Sept. 6, 2014 Temp. 103.2

Brinley woke up this morning with a temp of 103.2. So her doctor had us take her to primary's ER. 

She woke up at 3:30 this morning puking and had a fever of 99.9. She really didn't sleep much after that. Niether did the rest of us. When we woke up at 8 she was so hot. Last night me and the kids went down to Filmore, Ut to play while Troy was doing a gun show. That didn't quite happen for me and Brinley. :( So Brinley and I took off for the hospital. The boys stayed with Troy. We got to primary's around 10:30 (it was like a 3hr drive). They accessed her port. Did a blood draw and ran two IV antibiotics. We waited for the blood test to get her blood counts. Thankfully her ANC number was 900 so we got to go home. If it was 500 or less then she'd have to be admitted. They think it's a virus but they did cultures and will call if anything grows. The IV antibiotics cover her for 24 hours so if anything did come up she's protected. 

She is ready to go home. It was 3:30pm when we got to leave. She was freezing so she barrowed my jacket. So cute.

 She's doing better tonite. She was so happy she didn't have to stay. 

People are so sweet and kind. We are sitting at sonic waiting for our food. A guy and his little girl knock on the window and give Brinley this stuffed animal. They were parked next to us when we pulled in. Brinley was throwing up in a bag and with her being bald it's easy to know she's going thru something. 

I got a shake at sonic. She liked it so we shared. 

A lady dad met at a Gunshow last week sent her this blanket and two crocheted hats. Such thoughtful people. She is loved and possibly a little spoiled. ;) but can you blame us. It's hard not to spoil her. 

Hopefully she gets better the next day or two. Crazy times to say the least. But overall she's done pretty well considering

Aug. 25-29

Aug. 25th was the start of the 2nd week of the chemo 4 days in a row. She got sick today driving up to primary's. She fought getting her port accessed. She was a little moody today. Our appt wasn't until 1pm so I think a lot of it was she was just tired. Plus just plainly sick of all of this!!! Who could blame her. ;(

Chelsea got to go with us today. Yay We are in the back waiting for chemo. 

She started throwing up again while waiting for chemo. 

She just felt yucky! The chemo pill she takes every night causes nausea too. Her last pill is on Aug 31 for now. Yay She will get it again. When she starts it again she will have to take it for 18 months. :(

Jaxon started kindergarten this week too on the 26th. He was so excited. Day to day might seem long sometimes but overall time really goes too fast. 

This is receiving chemo at home (or in this case at my office) from the home health care nurse. It's nice they have this option so we didn't have to go to primary's everyday. 

We are done with the daily chemo. Yay

We now have a two week break. These next few weeks we have to watch her for fevers or pale or less energy. Due to these chemo's there is a possibility she might need a blood transfusion or platelets. So far so good. She has done so well. Such a trooper. 

She has 2 best friends a couple houses down. Their names are Reagan and London. They are so sweet. It is so cute to watch these girls become bestest friends. Everyday she wakes up and asks if she can go play with them. It's so nice she has someone to play with since "Mel's mom" is back to work as a 2nd grade teacher. She misses being able to see her during the day. I feel having these friends helps her to act better than she feels because she wants to play with them so bad. Which is great to have something or someone else to focus on when your feel so yucky. 

Her next round starts Sept. 15th. We are so excited for the break. We love you all and we are so grateful for your love and support. 

Aug. 18-19

Things have been so much better out of the hospital ;) she started her 2nd half of this round on Aug. 18th. She had to come home with her port accessed  because she got chemo 4 days in a row. 

Look real close at her hand. The nurse asked her to show her hand with the oxygen level monitor on it and she flipped them off. Unintentionally of course but deep down I'm thinking she really does feel that way. Lol

     She wanted her daddy. 

Some Minnie Mouse ears we got a clinic that day. So cute. 

Aug. 18 at clinic. Daddy sitting with her as they prepare her for sedation for her spinal tap. She did great with the sedation. Waking up was pretty funny. She saw double. She was counting how many eyes we had. Mom had 4 and dad had 5. It was really cute. 

Asking about the clock on the wall because she saw so many. 

            Waking up

While they were getting her prepped she asked for daddy but when she was waking up she asked for her mom. 

After her spinal tap we went back over to the clinic for her chemo. 

Sammy came for her first time. Brinley loved having her there. 

They played with lots of toys and read lots of books. 

Waiting for chemo. Think we might be tired. lol 

Going home. If you wondered how you eat a sucker with a mask this is it. Pretty clever. She was happy. 

After we were done at clinic we got to go to a party at Sugar House park. Primary Children's Hospital put it on. They have activities for the patients and their families quite a few times a year. It's pretty cool. The kids had a blast. 

The candy bar. They could pick out whatever they wanted and fill up a bag. 

            They had face painting. 

                     Cute kitty

                  Cute batmen

        Spiderman came. So excited

          Fishing pond. They all loved it 

            

              Playing in the park

She got stuck on top. Trying to figure a way down without falling. Lol. 

        They love playing at the park. 

She received chemo at home the next 3 days (19th, 20th & 21st).  The chemo's have been pretty nausiating so she has been taking her nausea medicine regularly. She's had some random pains that have woke her up in the middle of the night. She hasn't felt well but you wouldn't know it by the way she acts. She plays as much as she can. She gets tired fast and takes naps. She is amazingly strong and such a happy natured little girl. She amazes everyone who meets her. 

School also started this week on the 19th

      Sammy's a senior. Can't believe it

     Sterling 1st grade. So crazy! Growing         up so fast. 

Aug. 14 going home

First thing this morning. The flash was a little much. 😋

Doc just came in (8:30am). Her ANC is 800  this morning. (they think they counted wrong last night they said it was 2000. I didn't think it had jumped up so quickly)  Her temp was normal all night. So if her temp stays normal all day and if her culture hasn't grown anything by 5pm then we get to go home at 5. The 24 hour mark of culture isn't til 7pm so there is a slight chance something could grow after 5. She won't go home accessed and no antibiotics. Yay. Praying 

for a good day. 

Can't go out to playroom so we brought it to her. And of course bacon ;)

She wants more bacon but going to take a little break. But no worries she's finishing off her Pringles. 

She picked them out because the container is pink. The flavor is sweet chili tango. They are actually pretty good. She's loved them. 

Oh she's watching tangled too.  Very focused. 

She's pretty inventive. She wants to keep her Pringles can for toy storage. Clever girl. It is a pretty cute can. 

We brought her princess sticker/coloring book. She's been decorating us with stickers. 

Finally gave up and took a nap. But she wasn't tired. Just ask her. ;)

Eating her new favorite....ramen noodles. And watching nemo. Waiting to hopefully go home at 5pm. 

The craft lady came in and did paper tie dye with her. She loved it. She says she made it for me. She's so sweet. 

Blowing bubbles almost time to go home

It is 6pm and we are in the car going home. So so happy. Everything looked great so we got to go home. Praying it stays that way.