Yesterday was her last day of phase 1. She had a spinal tap and bone marrow aspiration. They put chemo in the spinal fluid and are testing the bone marrow to see how she has responded to the chemo. We will find out the results in a week or so. She will start phase 2 on April 21st. We don't know what that will consist of. They will let us know then. She is now done taking the steroids. And she got to drop 2 other meds because it was for side effects of the steroid. So for the next 10 days she only has one med on Monday and Tuesday, twice a day. We are so excited for the break. They will start more meds for phase 2. She is doing ok overall but she is always so tired and has no energy. She doesn't walk around to much. Her legs are stiff/sore from the chemo. Her appetite should go back to normal now that she's off the steroids and she will start losing the weight she's gained. She's losing her hair and she is pretty sad about that. It's hard to explain it to a three year old. Especially when we've always reassured her how pretty it was because it has not grown in very well. But she loves hats and head bands so we will make sure she has a lot that she loves.
We are so grateful for all of your love and prayers. Thank you. We love you.
She loves the little kitty!
Watching conference. :)
Jaxon is so sweet to her. ❤️
My mom brought home a lot of crafts for the kids to paint; they were pretty excited. :)
Stroller ride. :) We are loving this warm weather!!
She loves her daddy!
Waking up from the procedure yesterday.
Picking out some food; she was starving after the procedure.
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