Brinley woke up this morning quite angry and yelling. She is on steroids for the first 28 days and that causes severe mood swings as well as water retention. She will have chipmunk cheeks too. 2 days down, 26 to go. 45 mins later she is happy and sweet; letting Sammy feed her and lay with her. Which is huge. Usually it's mommy only. Thankful for semi fast mood swings.
Brinley has been skipping pain medication doses. She's been going like 8 hrs in between instead of 4. She has jaw pain which is a side effect from one of her medications. But we found a way to help by soaking a pink mouth swab in cold water and letting her rub it in her mouth. She likes it a lot. Her blood pressure is to high so she is starting medication for that today. It is a side effect from the steroids. So it should go away after she finishes with the steroids.
Also, we started another blood transfusion today. Her HGB has been under 8 for 3 days (this is the number that was 3 when she came in to the hospital and 14 is normal). So when it's under 8 they will do a blood transfusion.
Cute/Sad/Funny story haha.
So Brinley got to have her IV unattached for a couple hours today. And she says to my mom, "I don't like being treated like a dog on a leash". My mom didn't understand what she was saying until they came to hook her back up for the transfusion and she said it again to the nurse. She was talking about how her IV is a leash. It's amazing how little kids can process things and relate it to other things.
We love to see her smile :)
This is the pink mouth swab that made her jaw feel better.
The nurses brought her some crafts to paint; she loved it!
Brinley was covering her mouth so my mom couldn't get the medicine in. It's a new one for her blood pressure and at first she said "mmmmm sugar" then she tried it again and said "yuck, that is not sugar" haha. She didn't want it anymore after that.
This picture was taken when she had really bad leg pain and a headache :(
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