Monday, March 17, 2014

Home Sweet Home :)

Brinley came HOME!! :)

Today Brinley got another treatment of chemotherapy before going home; this one was different from the chemo that she will get every Friday. They had to watch her for severe reactions. Thankfully she had none. :) She had less headaches and less leg pain today which is always great. 

My mom got A LOT of training today from the Nutrition Specialist, the Clinic Worker, and Pharmacist before going home. She learned all about Brinleys medications, the side effects, the amount and times given. They gave her a calendar and chemo schedule because it can be confusing and a little overwhelming. She also got what they call the Leukemia Handbook that's a good 300 pages and got a tour of the clinic. There is now a pharmacy in our kitchen, Brinley has 12 prescriptions. There are 2 medications for part of the treatment and the rest are to treat the side effects.


The doctor removing Brinleys port access.







Nothing we love more than to see this little girl smile. :)


Having fun with the nurse; they have all been so amazing. 


Brinley wanted to drive all the cars before going home. :)


Brinley got to pick out a few hats because it was her last day. She looks so stinkin cute. :)


Leaving our unit to go home!!



Made a stop at the gift shop in the hospital to get her brothers and her a toy. Of course the 50 she received in the hospital couldn't possibly be enough. ;) Spoiled little girl haha but it's hard not to when you watch her suffer.


So so happy that she FINALLY gets to come home. :)


Car ride home, she was so so tired.


Only thing she wanted to do when she got home was lay in her own bed. My mom offered Brinley to lay in her bed but she wanted her own. And Jaxon took such great care of her; giving her candy!


Brinley has been doing so good at home, she's more energetic and happy.  She hasn't had any severe mood swings yet and she is eating so much better.  Today was overall a great day!

It is so wonderful to be home. Thank you for all your prayers, love and support! Everyone has been so amazing. We know our long journey will be easier because of our amazing family and friends. 











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